Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Friday, April 1, 2016

HOPE AND CANCER: FEATHERS AND ALL

By Julia Forth

“It’s important to say what hope is not: it is not the belief that everything was, is, or will be fine. The evidence is all around us of tremendous suffering and tremendous destruction. The hope I’m interested in is about broad perspectives with specific possibilities, ones that invite or demand that we act. It’s also not a sunny everything-is-getting-better narrative, though it may be a counter to the everything-is-getting-worse narrative. You could call it an account of complexities and uncertainties, with openings.”
Rebecca Solnit
Hope in the Dark: Untold Histories, Wild Possibilities

 

Writer, historian and activist, Rebecca Solnit’s book Hope in the Dark: Untold Histories, Wild Possibilities, originally published in 2004, has been reissued this year.  Although a book exploring political activism, Ms. Solnit’s articulation of what hope is and is not has a correlation to the idea of hope as experienced by people with cancer and their caregivers.  Hope is something that the Cancer Support Community (CSC) advocated for cancer patients and their families back in 1982 when it began as The Wellness Community and when cancer was mostly dread and death.  Dr. Harold Benjamin and his wife Harriet, who was diagnosed with breast cancer in the 1970s, founded CSC with its free psychosocial services of group support, classes, social activities and education.  The Benjamins knew firsthand the despair that cancer can bring and claimed a space for hope within the arena of life-threatening illness.  The seventies and early eighties were not often times of positive outcomes for cancer patients, or for open discussion of the anxieties that cancer brings to everyone affected by it.

Rebecca Solnit, also the author of Men Explain Things to Me, brings her journalistic eye, deep intellect and activist nature to this topic when she suggests a link between hope and action.  Emily Dickenson wrote, “Hope” is the thing with feathers –  that perches in the soul”.   A true subtlety of life, often lost in the blunt upset of cancer, is that hope stays on the ground with us and lifts us, everything together.  Hope is often thought of as something that safeguards us from gritty reality but, in Rebecca Solnit’s words, it is about “broad perspectives with specific possibilities, ones that invite or demand that we act (emphasis added).”

In 2016, treatments have improved, people are living longer and better, and the word “cancer” need not be whispered.  But, no one would deny that cancer does, at the very least, bring anxieties and sometimes a loss of hope.  Dr. Benjamin’s Patient Active Concept, revolutionary in 1982 and still relevant today, specifically encourages cancer patients and their families to partner with their physicians, to not be passive victims during the course of their disease but to take back control—in short, to be active in their own lives, to be active in hope and to welcome the possibility of change. 
Ms. Solnit talks about hope as containing “openings.”  Hope, as providing an opening for action, is exactly what CSC encourages.  Research now shows that CSC’s services of support and outlook of hope can enhance survivorship.  As cancer patients and families look for places to connect with others and for places inside themselves where the “thing with feathers” perches, CSC remains a place of hope.  CSC was created as a vessel for possibilities; it does not promise that everything will be fine but rather that life, at the very least, will perhaps be more vibrant in choosing to live as a hope-fueled, active participant, no matter the outcome. 


Julia Forth is the Executive Director of Cancer Support Community Benjamin Center (CSC)  founded in 1982 as The Wellness Community in Los Angeles and part of an international network of affiliates that offer the highest quality social and emotional support for people with cancer and their families.  To find a CSC in your area, please visit www.cancersupportcommunity.org or to learn more about CSC Benjamin Center in Los Angeles, visit www.cancersupportcommunitybenjamincenter.org or call 310-314-2555.

Friday, April 25, 2014

Yoga's Impact on Inflammation, Mood, and Fatigue in Breast Cancer Survivors: A Randomized Controlled Trial.

Check out this study re: yoga and it's benefits for cancer patients.  Cancer Support Community has many yoga classes per week, free of charge for those affected by cancer. 

Authors
Kiecolt-Glaser JK, et al. Show all

Journal

J Clin Oncol. 2014 Apr 1;32(10):1040-9. doi: 10.1200/JCO.2013.51.8860. Epub 2014 Jan 27.

Affiliation

Abstract

PURPOSE: To evaluate yoga's impact on inflammation, mood, and fatigue.
   
PATIENTS AND METHODS: A randomized controlled 3-month trial was conducted with two post-treatment assessments of 200 breast cancer survivors assigned to either 12 weeks of 90-minute twice per week hatha yoga classes or a wait-list control. The main outcome measures were lipopolysaccharide-stimulated production of proinflammatory cytokines interleukin-6 (IL-6), tumor necrosis factor alpha (TNF-α), and interleukin-1β (IL-1β), and scores on the Multidimensional Fatigue Symptom Inventory-Short Form (MFSI-SF), the vitality scale from the Medical Outcomes Study 36-item Short Form (SF-36), and the Center for Epidemiological Studies-Depression (CES-D) scale.
   
RESULTS: Immediately post-treatment, fatigue was not lower (P > .05) but vitality was higher (P = .01) in the yoga group compared with the control group. At 3 months post-treatment, fatigue was lower in the yoga group (P = .002), vitality was higher (P = .01), and IL-6 (P = .027), TNF-α (P = .027), and IL-1β (P = .037) were lower for yoga participants compared with the control group. Groups did not differ on depression at either time (P > .2). Planned secondary analyses showed that the frequency of yoga practice had stronger associations with fatigue at both post-treatment visits (P = .019; P < .001), as well as vitality (P = .016; P = .0045), but not depression (P > .05) than simple group assignment; more frequent practice produced larger changes. At 3 months post-treatment, increasing yoga practice also led to a decrease in IL-6 (P = .01) and IL-1β (P = .03) production but not in TNF-α production (P > .05).
   
CONCLUSION: Chronic inflammation may fuel declines in physical function leading to frailty and disability. If yoga dampens or limits both fatigue and inflammation, then regular practice could have substantial health benefits.
 
 
 

Tuesday, January 28, 2014

THE MINDFUL REVOLUTION

Cancer Support Community-Benjamin Center offers MBSR free of charge to people affected by cancer.  Visit  http://bit.ly/CSCMB2

TIME Magazine: Monday, February 3
By Kate Pickert

The raisins sitting in my sweaty palm are getting stickier by the minute. They don't look particularly appealing, but when instructed by my teacher, I take one in my fingers and examine it. I notice that the raisin's skin glistens. Looking closer, I see a small indentation where it once hung from the vine. Eventually, I place the raisin in my mouth and roll the wrinkly little shape over and over with my tongue, feeling its texture. After a while, I push it up against my teeth and slice it open. Then, finally, I chew--very slowly.


I'm eating a raisin. But for the first time in my life, I'm doing it differently. I'm doing it mindfully. This whole experience might seem silly, but we're in the midst of a popular obsession with mindfulness as the secret to health and happiness--and a growing body of evidence suggests it has clear benefits. The class I'm taking is part of a curriculum called Mindfulness Based Stress Reduction (MBSR) developed in 1979 by Jon Kabat-Zinn, an MIT-educated scientist. There are nearly 1,000 certified MBSR instructors teaching mindfulness techniques (including meditation), and they are in nearly every state and more than 30 countries. The raisin exercise reminds us how hard it has become to think about just one thing at a time. Technology has made it easier than ever to fracture attention into smaller and smaller bits. We answer a colleague's questions from the stands at a child's soccer game; we pay the bills while watching TV; we order groceries while stuck in traffic. In a time when no one seems to have enough time, our devices allow us to be many places at once--but at the cost of being unable to fully inhabit the place where we actually want to be.

Mindfulness says we can do better. At one level, the techniques associated with the philosophy are intended to help practitioners quiet a busy mind, becoming more aware of the present moment and less caught up in what happened earlier or what's to come. Many cognitive therapists commend it to patients as a way to help cope with anxiety and depression. More broadly, it's seen as a means to deal with stress.

But to view mindfulness simply as the latest self-help fad underplays its potency and misses the point of why it is gaining acceptance with those who might otherwise dismiss mental training techniques closely tied to meditation--Silicon Valley entrepreneurs, FORTUNE 500 titans, Pentagon chiefs and more. If distraction is the pre-eminent condition of our age, then mindfulness, in the eyes of its enthusiasts, is the most logical response. Its strength lies in its universality. Though meditation is considered an essential means to achieving mindfulness, the ultimate goal is simply to give your attention fully to what you're doing. One can work mindfully, parent mindfully and learn mindfully. One can exercise and even eat mindfully. The banking giant Chase now advises customers on how to spend mindfully.

There are no signs that the forces splitting our attention into ever smaller slices will abate. To the contrary, they're getting stronger. (Now arriving: smart watches and eyeglasses that will constantly beam notifications onto the periphery of our vision.) Already, many devotees see mindfulness as an indispensable tool for coping--both emotionally and practically--with the daily onslaught. The ability to focus for a few minutes on a single raisin isn't silly if the skills it requires are the keys to surviving and succeeding in the 21st century.

REWIRING YOUR BRAIN
With Tiny Bits of raisin still stuck in my teeth, I look around at the 15 other people in my MBSR class, which will meet every Monday evening for eight weeks. My classmates cite a wide variety of reasons they have plunked down $350 to learn about meditation and mindfulness. One 20-something blond woman said back-to-back daily work meetings meant she couldn't find time to pause and reset; she had been prescribed the anti-anxiety drug Klonopin. A mother on maternity leave said "being present" with her infant seemed more important than ever, but she was struggling. One man, a social worker, said he needed help dealing with the stress of working with clients trying to get their lives on track.

Although I signed up to learn what mindfulness was all about, I had my own stressors I hoped the course might alleviate. As the working parent of a toddler, I found life in my household increasingly hectic. And like so many, I am hyperconnected. I have a personal iPhone and a BlackBerry for work, along with a desktop computer at the office and a laptop and iPad at home. It's rare that I let an hour go by without looking at a screen.

Powering down the internal urge to keep in constant touch with the outside world is not easy. At the start of each two-hour MBSR class, our teacher, a slight woman named Paulette Graf, hit two small brass cymbals together to indicate we should begin meditating. During this agonizingly frustrating period, which lasted up to 40 minutes, I would try to focus on my breath as Paulette advised, but I felt constantly bombarded by thoughts about my family, random sounds in the room and even how I would translate each evening's session into this story.

One evening, we were introduced to mindful walking. In our small meeting room, we formed a circle and paced together. "Feel your heel make contact with the floor, then the ball of your foot," said Paulette. "One foot, then the other." Anxious feelings about planning the week ahead and emails in my inbox that might be waiting for replies crept into my head even though my phones were off and tucked away. Mindfulness teachers say this kind of involuntary distraction is normal and that there's no point in berating ourselves for mentally veering away from the task at hand. Rather, they say, our ability to recognize that our attention has been diverted is what's important and at the heart of what it means to be mindful.

Some of this may sound like a New Age retread of previous prescriptions for stress. Mindfulness is rooted in Eastern philosophy, specifically Buddhism. But two factors set it apart and give it a practical veneer that is helping propel it into the mainstream.

One might be thought of as smart marketing. Kabat-Zinn and other proponents are careful to avoid any talk of spirituality when espousing mindfulness. Instead, they advocate a commonsense approach: think of your attention as a muscle. As with any muscle, it makes sense to exercise it (in this case, with meditation), and like any muscle, it will strengthen from that exercise.

A related and potentially more powerful factor in winning over skeptics is what science is learning about our brains' ability to adapt and rewire. This phenomenon, known as neuroplasticity, suggests there are concrete and provable benefits to exercising the brain. The science--particularly as it applies to mindfulness--is far from conclusive. But it's another reason it's difficult to dismiss mindfulness as fleeting or contrived.

Precisely because of this scientific component, mindfulness is gaining traction with people who might otherwise find mind-body philosophies a tough sell, and it is growing into a sizable industry. An NIH report found that Americans spent some $4 billion on mindfulness-related alternative medicine in 2007, including MBSR. (NIH will release an update of this figure later this year.) There's a new monthly magazine, Mindful, a stack of best-selling books and a growing number of smartphone apps devoted to the concept.

For Stuart Silverman, mindfulness has become a way to deal with the 24/7 pace of his job consulting with financial advisers. Silverman receives hundreds of emails and phone calls every day. "I'm nuts about being in touch," he says. Anxiety in the financial industry reached a high mark in the 2008 meltdown, but even after the crisis began to abate, Silverman found that the high stress level remained. So in 2011, he took a group of his clients on a mindfulness retreat. The group left their smartphones behind and spent four days at a resort in the Catskills, in upstate New York, meditating, participating in group discussions, sitting in silence, practicing yoga and eating meals quietly and mindfully. "For just about everybody there, it was a life-changing experience," says Silverman.

The Catskills program was run by Janice Marturano, a former vice president at General Mills who began a corporate mindfulness initiative there and left the company in 2011 to run an organization she started called the Institute for Mindful Leadership. (About 500 General Mills employees have participated in mindfulness classes since Marturano introduced the concept to the company's top managers in 2006, and there is a meditation room in every building on the company's Minneapolis campus.) Marturano, who ran a well-attended mindfulness training session at Davos in 2013 and wrote a book called Finding the Space to Lead: A Practical Guide to Mindful Leadership, published in January, says most leaders she encounters feel besieged by long work hours and near constant connectivity. For these people, there seems to be no time to zero in on what's important or plan ahead.

There's evidence they're correct. Researchers have found that multitasking leads to lower overall productivity. Students and workers who constantly and rapidly switch between tasks have less ability to filter out irrelevant information, and they make more mistakes. And many corporate workers today find it impossible to take breaks. According to a recent survey, more than half of employed American adults check work messages on the weekends and 4 in 10 do so while on vacation. It's hard to unwind when your boss or employees know you're just a smartphone away. Says Marturano: "The technology has gone beyond what we are capable of handling."

It might seem paradoxical, then, that Silicon Valley has become a hotbed of mindfulness classes and conferences. Wisdom 2.0, an annual mindfulness gathering for tech leaders, started in 2009 with 325 attendees, and organizers expect more than 2,000 at this year's event, where participants will hear from Kabat-Zinn, along with executives from Twitter, Instagram and Facebook. Google, meanwhile, has an in-house mindfulness program called Search Inside Yourself. The seven-week course was started by a Google engineer and is offered four times a year on the company's Mountain View, Calif., campus. Through the course, thousands of Googlers have learned attention-focusing techniques, including meditation, meant to help them free up mental space for creativity and big thinking.

It makes sense in a way. Engineers who write code often talk about "being in the zone" the same way a successful athlete can be, which mindfulness teachers say is the epitome of being present and paying attention. (Apple co-founder Steve Jobs said his meditation practice was directly responsible for his ability to concentrate and ignore distractions.) Of course, much of that world-class engineering continues to go into gadgets and software that will only ratchet up our distraction level.

But lately there's been some progress in tapping technology for solutions too. There are hundreds of mindfulness and meditation apps available from iTunes, including one called Headspace, offered by a company of the same name led by Andy Puddicombe, a former Buddhist monk. Puddicombe, 40, co-founded Headspace in the U.K. in 2010 and opened a new office in Los Angeles in 2013 after attracting venture capital. The company offers free content through an app and sells subscriptions to a series of web videos, billed as a "gym membership for the mind," that are narrated by Puddicombe and explain the tenets of mindfulness and how to meditate.

"There's nothing bad or harmful about the smartphone if we have the awareness of how to use it in the right way," says Puddicombe. "It's unplugging by plugging in."

THE SCIENCE OF DESTRESSING
Jon Kabat-Zinn, the father of MBSR, doesn't look like the kind of person to be selling meditation and mindfulness to America's fast-paced, stressed-out masses. When I met him at a mindfulness conference in April, he was dressed in corduroys, a button-down shirt and a blazer, with wire-rimmed glasses and a healthy head of thick gray hair. He looked more like the professor he trained to become than the mindfulness guru he is.

But ultimately, a professor may prove more valuable than a guru in spreading the word on mindfulness. The son of an immunologist and an artist, Kabat-Zinn, now 69, was earning a doctorate in molecular biology at MIT in the early 1970s when he attended a lecture about meditation given by a Zen master. "It was very moving. I started meditating that day," he says. "And the more I meditated, the more I felt like there was something else missing that science could say in terms of, like, how we live as human beings."

By 1979, Kabat-Zinn had earned his Ph.D. and was working at the University of Massachusetts Medical Center studying muscle development and teaching anatomy and cell biology to medical students. On a meditation retreat that year, he had a revelation. What if he could use Buddhism-based meditation to help patients cope with conditions like chronic pain? Even if he couldn't alleviate their symptoms, Kabat-Zinn speculated that mindfulness training might help patients refocus their attention so they could change their response to pain and thereby reduce their overall suffering.

With three physicians, Kabat-Zinn opened a stress-reduction clinic at UMass based on meditation and mindfulness. "It was just a little pilot on zero dollars," he says.

Almost immediately, some of the clinic's patients reported that their pain levels diminished. For others, the pain remained the same, but the mindfulness training made them better able to handle the stress of living with illness. They were able to separate their day-to-day experiences from their identity as pain patients. "That's what you most hope for," says Kabat-Zinn, "not that you can cure all diseases, but you could help people live in a way that didn't erode their quality of life beyond a certain point." Eventually Kabat-Zinn's program was absorbed into the UMass department of medicine and became the MBSR curriculum now used by hundreds of teachers across the country.

In the years since, scientists have been able to prove that meditation and rigorous mindfulness training can lower cortisol levels and blood pressure, increase immune response and possibly even affect gene expression. Scientific study is also showing that meditation can have an impact on the structure of the brain itself. Building on the discovery that brains can change based on experiences and are not, as previously believed, static masses that are set by the time a person reaches adulthood, a growing field of neuroscientists are now studying whether meditation--and the mindfulness that results from it--can counteract what happens to our minds because of stress, trauma and constant distraction. The research has fueled the rapid growth of MBSR and other mindfulness programs inside corporations and public institutions.

"There is a swath of our culture who is not going to listen to someone in monks' robes, but they are paying attention to scientific evidence," says Richard J. Davidson, founder and chair of the Center for Investigating Healthy Minds at the Waisman Center, at the University of Wisconsin at Madison. Davidson and a group of co-authors published a paper in the prestigious Proceedings of the National Academy of Sciences in 2004 that used electroencephalography to show that Buddhist monks who had logged at least 10,000 hours of meditation time had brains with more functional connectivity than novice meditators. The monks also had more gamma-wave activity, indicating high states of consciousness.

Of course, most people will never meditate at the level of a monk. But neuroscientists have shown that even far less experienced meditators may have more capacity for working memory and decreases in mind-wandering.

Many of the studies on mindfulness and meditation have been funded by individual private donors and have not met the highest scientific standards, leading the NIH to declare in 2007 that future research had to be "more rigorous." Perhaps to this end, the NIH has funded some 50 clinical trials in the past five years examining the effects of mindfulness on health, with about half pertaining to Kabat-Zinn's MBSR curriculum alone. The NIH trials completed or now under way include studies on how MBSR affects everything from social-anxiety disorder to the body's immune response to human papilloma virus to cancer-related fatigue. Altogether, in 2003, 52 papers were published in scientific journals on the subject of mindfulness; by 2012, that number had jumped to 477.

MINDFULNESS GOES MAINSTREAM
Tim Ryan, a democratic Congressman from Ohio, is among those pushing to use more federal funds for mindfulness research. Stressed and exhausted, Ryan attended a mindfulness retreat led by Kabat-Zinn in 2008 shortly after the election. Ryan turned over his two BlackBerrys and ended the experience with a 36-hour period of silence. "My mind got so quiet, and I had the experience of my mind and my body actually being in the same place at the same time, synchronized," says Ryan. "I went up to Jon and said, 'Oh, man, we need to study this--get it into our schools, our health care system.'"

In the years since, the Congressman has become a rock star among mindfulness evangelists. His book A Mindful Nation was published in 2012, and Mindful, launched in May 2013, put Ryan on the cover of its second issue after he secured a $1 million federal grant to teach mindfulness in schools in his home district. Ryan has hosted meditation sessions and a mindfulness lecture series on Capitol Hill for House members and their staffs. The effort, says Ryan, is all about "little candles getting lit under the Capitol dome."

Elizabeth Stanley, an associate professor at Georgetown, is trying to do the same for those in uniform. Stanley was an Army intelligence officer deployed to the Balkans in the early 1990s. After she left active duty, Stanley enrolled in a doctoral program at Harvard and pursued an MBA at MIT--at the same time--planning a career studying national-security issues.

But as the demands of two graduate programs combined with leftover stress from her time deployed, Stanley found herself unable to cope. "I realized my body and nervous system were constantly stuck on high," she says. She underwent therapy and started practicing yoga and mindful meditation, eventually completing both of her degree programs as well.

"On a long retreat in 2004, I realized I wanted to pull these two sides of me together and find a way to share these techniques with men and women in uniform," Stanley says. She teamed up with Amishi Jha, a neuroscientist at the University of Miami who studies attention, and together they launched a pilot study with private funding that investigated whether a mindfulness program could make Marines more resilient in stressful combat situations. The findings were so promising, according to Jha, that the Department of Defense awarded them two $1 million grants to investigate further, using an MBSR-based curriculum Stanley developed called Mindfulness-Based Mind Fitness Training. Stanley has been involved in two additional mindfulness studies with Marines since, and Jha has been awarded $3.4 million more in federal grants to study how mindfulness training affects stress among other populations, including undergraduates facing exams and accountants slogging through tax season.

Educators are turning to mindfulness with increasing frequency--perhaps a good thing, considering how digital technology is splitting kids' attention spans too. (The average American teen sends and receives more than 3,000 text messages a month.) A Bay Area--based program called Mindful Schools offers online mindfulness training to teachers, instructing them in how to equip children to concentrate in classrooms and deal with stress. Launched in 2010, the group has reached more than 300,000 pupils, and educators in 43 countries and 48 states have taken its courses online.

"It was always my intention that mindfulness move into the mainstream," says Kabat-Zinn, whose MBSR bible, Full Catastrophe Living, first published in 1990, was just reissued. Lately, the professor has also been spreading the gospel abroad. On a November trip to Beijing, he helped lead a mindfulness retreat for about 250 Chinese students, monks and scientists. "This is something that people are now finding compelling in many countries and many cultures, and the reason is the science," he says.

LISTENING TO LIFE
The MBSR class I took consisted of 21 hours of class time, but there was homework. One week, we were assigned to eat a snack mindfully and "remember to inhale/exhale regularly (and with awareness!)," according to a handout. Since we were New Yorkers, another week's assignment was to count fellow passengers on a subway train. One student in my class said he had a mindfulness breakthrough when he stopped listening to music and playing games on his phone while riding to work. Instead, he observed the people around him, which he said helped him be more present when he arrived at his office.

After eight weeks, we gathered one Saturday for a final exercise, a five-hour retreat. We brought our lunches, and after meditating and doing yoga, we ate together silently in a second-floor room overlooking a park. After the meal, Paulette led us into the park and told us to walk around for 30 minutes in a meditation practice known as aimless wandering. No phones and no talking. Just be present, she said.

As I looked across a vast lawn, I easily spotted my fellow MBSR students. They looked like zombies weaving and wandering alone through groups of friends and families lounging on picnic blankets or talking and barbecuing. I saw a group of 20-something men playing Frisbee, young kids riding bikes and a pair of women tanning in the sun.

I had lived close to this park for three years and spent hundreds of hours exploring it, but what struck me as different on the day of the retreat were the sounds. I noticed the clap, clap of a jogger's sneakers going by on a paved path. I saw a group playing volleyball on the lawn, and for the first time, I heard the game. The ball thudded when it hit the grass and whapped when it was being served. The players grunted when they made contact. Thud, whap, grunt. Whap, whap, thud. I heard a soft jingling, and I knew just what it was. A dog with metal ID tags came up behind me and passed by. Jingle, jingle.

After the prescribed half hour, we returned to our meeting room with Paulette. We had a brief group discussion about how we could continue our mindfulness training through other classes, and then we folded our chairs and put them away in a closet. Silently, we eased down a set of stairs and out the front door. I made it all the way home before I turned on my phones.

In the months since, I haven't meditated much, yet the course has had a small--but profound--impact on my life. I've started wearing a watch, which has cut in half the number of times a day I look at my iPhone and risk getting sucked into checking email or the web. On a tip from one of my MBSR classmates, when I'm at a restaurant and a dining companion gets up to take a call or use the bathroom, I now resist the urge to read the news or check Facebook on my phone. Instead, I usually just sit and watch the people around me. And when I walk outside, I find myself smelling the air and listening to the soundtrack of the city. The notes and rhythms were always there, of course. But these days they seem richer and more important.

 
 

Monday, September 16, 2013

THANKFUL FOR MY CANCER EXPERIENCE? YES OR NO?

By Carol L. Soskin
 

Flashback to seven years ago . . .

 
After over a year of weight loss, flu like symptoms and coughs, a year filled with X-rays, biopsies and other tests, my neck became very swollen and I was having trouble breathing.  I was informed that my lung had collapsed.  I was diagnosed with non-Hodgkin’s lymphoma.  I was immediately admitted to the hospital and started chemo.  My life changed before my very eyes; this wasn't supposed to be happening to me!

I had treatments every three weeks, then radiation.  All through it I kept my sense of humor but I felt that I was in another world.  Or was it another planet?  This was my new reality now. 

My great friends, family and doctors helped me on this journey to save my life.  It was shortly thereafter that I found the Cancer Support Community-Benjamin Center (CSC).  I made wonderful new friends and regularly attended the Writing Group.  The feedback about my writing as well as listening to other peoples’ writing helped me move forward with my life both mentally and physically.  I include the support group ‘Time to Talk’ and the many educational lectures at CSC in this story of gratitude. 

CSC understood.

Cancer gave me many gifts.

So the answer is  .  . . yes, I am very thankful!!
 
 
CSC's Writing Group meets every Wednesday from 1 - 3pm.  Time to Talk, a drop-in group for people with cancer meets every Monday from 2:30 - 4:30pm.  All CSC groups are run by psychotherapists.
 
 
 
 
 

Monday, August 5, 2013

Don't Say This to a Cancer Patient

Dan Duffy This post was originally posted in the July 17, 2013 of the The Huffington Post.  By Dan Duffy who is a Filmmaker & Co-founder, The Half Fund.


Eight years ago, I was working for a local video production company assigned with the task of telling the stories of parents who lived through the unimaginable pain of having a baby die in the Neonatal Intensive Care Unit, or NICU, at St. Louis Children's Hospital. What made this such an arduous feat was the fact that both my wife, Stephanie, and my editor, Megan, were pregnant at the time. It was a surreal experience in the editing room every day. Meghan and I would put together a series of shots, and then have to excuse ourselves at various times to cry.

And I have to tell you, it turned me into a raving lunatic at home with my poor wife. "Can I do this? Let me do this! Don't worry about lifting that, I'll get it! Can I get you anything? Do you have any cravings? Would you like a brownie? How's everything feeling down there? Do you need a blanket? Would you like to watch a movie? Would you like me to make a movie for you to watch? Are you out of prenatal vitamins? Do you want me to..."

SLAP

"Okay, never mind then."

I was saying all of the wrong things, and I didn't even realize it. In fact, it took me re-watching an interview we did for the project to finally see the light. We had interviewed this couple who told the harrowing story of how their baby died, and how the only time they were able to hold him without tubes and wires was in the few minutes after he had actually passed. They washed his hair and dressed him for the last time.

I still think of that moment literally every single time I wash either of our boys hair while taking a bath or shower. A few times I've even had to excuse myself right in the middle of lathering them up.
But the next thing that this lady said really shook me to my core: "And then people would say to me 'At least he's not in pain,' or 'At least he's in a better place.' No...a better place is in my arms. There is no 'at least.'"

The last blog I wrote dealt with people who get mad at God during cancer. Well I didn't quite realize the crap-storm that would follow from a fair amount of people. One that really struck me came from a woman who read our blog through the Stupid Cancer Facebook page. In a nutshell, it read something like, "I hate it when people say stuff like 'God doesn't give you a cross more than you can bear.'"
And all of a sudden, "There is no 'at least'" came flooding back. With that in mind, I want to share a few thoughts with those of us who are either friends or loved ones of cancer patients or caregivers.
For starters, we know that you love us, care for us, and want to comfort us, and we love and adore you for it, and are extremely grateful for your compassion and kindness. With that said, we will internally, and sometimes externally, tear you a new anus for saying any of the following platitudes.

1. "This may be hard to hear, but..." Going through cancer, life is beyond hard enough. Unless you've gone through it, it's incredibly hard to empathize with its level of "suck." Don't make it any harder. Which leads directly into...

2. "I can relate." Unless you have gone through chemo, radiation, and a ball (or other part) removal, it is almost impossible to be able to physically relate. Emotionally, maybe. Physically, meh. The odd thing is that people that have gone through this never, ever say "I can relate," or "I know what you're going through," and the reason is simple: if they do relate, story swapping starts. "You lost a breast and part of your jaw? That is awful. I lost my lower leg and now my heel is my knee. And don't get me started on those damn Pet Scans. Catheter, my ass!"

3. "This is part of God's bigger plan."
If you want a cancer patient who loves God to start hating God, say this to said cancer patient. If he or she is not mad at God before this sentence is uttered, he or she is pretty pissed off now. "Wait, you think God did this? What a jacksauce!" Oh, and for an ever higher state of anger, as I said earlier:

4. "God doesn't give you a cross you can't bear."
It takes hindsight to understand the higher purpose if that is what you are looking for. You don't stand in a burning building or fend off sharks while stranded in the ocean and think, "Well, this is all happening for a reason." You extricate yourself from the situation, and then you reflect...if you're still alive, that is.

And I will say this: at some point during the battle, God-fearing or not, we all have a cross more than we can bear. It's only when we have it that our limits are tested, broken, redefined and rebuilt. Every single one of us have, at some point, given in. I recently talked with an absolute powerhouse named Dr. Sheri Phillips, who is the national spokesperson for the Komen "3 Day Walk for the Cure." She told me about one night while battling breast cancer, she started feeling massive tightness in her chest. Instead of calling an ambulance thinking she was having a heart attack, she went to sleep, thinking "If this is how I'm going out, so be it, because God, I'm just so tired of fighting." And when she woke up, her limits were tested... broken... redefined... and would eventually be rebuilt.

HOWEVER...

To cancer patients and caregivers, you should not get mad when you hear these words coming from anyone: "I'm sorry you're going through this."

Lots of us try to throw those words back at the folks who say it. "Why are you sorry?" The reason people say it is simple: it's the right thing to say. It doesn't matter if it is reactionary. It's what should be said. It's not pity; it's love, affection, concern, or at a minimum...being polite.
 
The argument is "I'm sorry" is used as often as "Please" and "Thank you," and people have said, "They're just throw-away words." Well the next time you find them as "throw-away," have someone refuse to keep a door open for you at the mall, or hand someone a salt-shaker at the table and not receive a "thank you." Or my personal vexation...let someone into your lane, and then have them not wave.

"I'm sorry" is a polite way of saying "I don't know what you're going through because I can't quite relate, but it hurts my heart to know that you're suffering."

"I'm sorry" is good for casual friends, acquaintances, and even strangers. But if you are utterly close to someone battling, there is one sure thing you can say to make them feel even a shred of a whiff of a modicum of better:

"I will be here for you in any way you need, in any way I can."

And that's it. Period. Finito Mussolini.

So now that you know this, it's important for patients and caregivers to not be afraid to gently tell your loved ones where they can stick their platitudes, while also expressing gratitude for the fact that they want to make you feel better, even if for only a second or two. It is up to us to teach them, no matter how hard it might be to say.

Because in the end, by you being the a-hole, you're helping them to not come off like an a-hole. And no one likes being the a-hole...not even the a-hole.

Discover more at www.thehalffund.org


To view original document go to: http://www.huffingtonpost.com/dan-duffy/what-not-to-say-to-a-canc_b_3578732.html

Wednesday, July 31, 2013

When Your Husband Has Cancer You May Have to Lie



Judy SilkThis post was originally posted in the July 22, 2013 of the The Huffington Post.  By Judy Silk.  Judy Silk is a stand up comic, freelance writer and blogger at judemablogma.blogspot.com. A California native, she requires little water.


Cancer is everywhere. It's probably just a function of my age (56), but I seem to know way too many people, close ones, who are affected.

My husband for one. He is my second husband, and the love of my life. We both needed to be divorced to find our way to each other, and consider it to have been beshert (the Yiddish word for "meant to be"). We got married with our children on a family cruise to Alaska. One year later, he was diagnosed with colon cancer. I've had to deal with that. I've had to be devastated, crushed, strong, hopeful and cheerful. My rabbi said to me early on, "Don't go to the funeral today," and I've taken that to heart. We live each day fully, lovingly and gratefully. But his diagnosis is terminal. Short of a miracle, that is our plight.

I was motivated to write this because I have known an overwhelming outpouring of support, concern and offers of help and love. I feel like I want to put a precision to these offers, and to the reality of what living with a terminal loved one entails. We sometimes want to dance around the fine points, but I'm hoping it would serve everyone well if I could articulate some details. After all, I want help and I know you want to give it. Here are some things you might want to consider if you know someone with cancer.

1. Accept that I am going to have to lie to you. When you ask, "How's he doing?" accept that it's in your and my best interest for me to be non-specific. So I have to say, "He's doing okay," and leave it at that. We can then be appreciative that you asked, and you can be thankful to not know more. They say the devil is in the details.

2. Don't tell us to give up sugar. I know you mean well with your solutions and alternative treatments. You want to share and provide an opportunity to do what no medical science can do, but you're also telling a dying man that he should spend his last remaining days, months or years torturing himself for NO REASON. At this point, we look at every day like a Last Supper. And I encourage him to do ANYTHING HE WANTS. We don't give up hope. Never. But I want him to have all pleasure, all indulgence. I want him to have the greatest joy he's ever had. Can you see why when you say, "Give up sugar and dairy and you'll be cured," it comes across like "If you don't deprive yourself, you are therefore responsible for killing yourself?" It's a really ugly notion and not valid in his case. His cancer is wide-spread. I shouldn't have to explain this to you.

3. When you ask what you can do for us, be ready for it to be something other than a casserole. Because what really helps are small things. Going to Trader Joe's? Give me a call. Nine times out of 10, I won't need it, but this might be the 10th time that I do. If you have kids my daughter's age, and you're going to a movie, maybe you could invite her? I don't mean for you to invent activities, and certainly not every week. I wouldn't want my daughter to think I'm getting rid of her, but it makes me feel less like I'm imposing if the invitation comes from you rather than me asking.

4. Call and invite me to kvetch. I may not, but I need some irrational venting. For me to complain about the cancer is futile. But that doesn't mean that I don't harbor anger and frustration in my bloodstream. So maybe help me by allowing me to unload it on some unsuspecting target, like say, a neighbor who has perpetrated a slight insult upon me. If I can heap my scorn on that deflective victim, it helps unravel the hurt.

5. At a certain point, families like ours do need a little extra cooking help. Not an onslaught (we don't have a big enough freezer), and not a schedule -- we're not to that point -- but occasionally. So you might ask if I have a recipe you could make, or if you're making some killer wild-rice salad, offer to bring us a quart? That kind of thing. But ask first. When I just get random quarts of foods, it eerily reminds me of being at the end point, and I don't want that.

6. Give me a coupon for a favor. Since I'm working, raising a teenager, still parenting a college kid and caring for an elderly widowed Mom who lives an hour away, I miss a lot. Things that occur to me that are helpful would be: offering to drive down to a pharmacy across town to pick up our increasing cornucopia of meds; offering to drive my teenager to an appointment or activity; having your kid offer to walk the dogs for us. Maybe if you're going out to dinner, see if you can pick something up for us. Even if we get it after we've had dinner, we may like to have it the next day. That kind of thing.

The amazing thing about this whole cancer experience has been the extreme outpouring of support from our friends and relatives. Everyone says, "If there's anything I can do, please let me know." But it's hard to be in the position of repeatedly asking for help. As primary caretaker, I don't want to look or be pathetically needy. I know that in my heart it makes people feel good to help out. It would for me. This list is just a guideline that might make it easier for us both to band together to support the one who ultimately needs it, the one who is no longer in the position to be too proud to ask for help. It allows me to acknowledge that I have more on my plate than I can handle sometimes, and I hope it's a good road map for us to work together to support the whole.

Thanks mostly for listening. Oh, and I have a really good recipe for paella. (Too much?)


To view original document go to: http://www.huffingtonpost.com/judy-silk/tips-for-helping-families-affected-by-cancer_b_3629082.html?utm_hp_ref=email_share

Monday, July 15, 2013

A Cancer Doctor of One’s Own

By Susan Gubar
From
   Health Science Living With Cancer

Sometimes sessions with my oncologist resemble meetings with a therapist. Why am I entranced with a woman who continues to prescribe procedures that distress me? The attraction was instantaneous, maybe because I had been so dismayed by her predecessor.

After I first learned I had ovarian cancer, four years ago, the oncologist who appeared at my hospital bedside struck me as shifty. He made his pitch with darting eyes, explaining that the patients he treats are grateful because he lets them off the hook when they are exhausted and want an extra week between infusions. Another person might have found his attitude protective. I found it patronizing. 
To be fair to him, I was in a state of shock and would have reacted with revulsion against any oncologist. When I was first diagnosed, the disease felt like a death sentence that needed to be mourned. Neither the promise of a week’s respite during treatment nor the convenience of a doctor’s office minutes from my house could override my (undoubtedly irrational) antipathy.

Should it matter what oncologist we choose, since the “gold standard” of many chemotherapy protocols remains the same throughout many medical institutions in this country? Whether you are being treated at a private practice or in a research center, oncologists tend to recommend similar regimens in response to various cancers. Most patients need to find someone well certified within a 60-mile radius of their home.

But not anyone will do. Unlike surgeons, oncologists conduct their business over a course of months or years. During the many 15- or 20-minute sessions, patients and doctors relate to each other through small talk, one of the most intimate of human exchanges.

Yes, there is the occasional prodding finger, or a stethoscope might appear. But more often the oncologist and the cancer patient engage in conversation. If the doctor seems hurried or arrogant or incomprehensible, it may be impossible for trust to evolve. And, odd as it may seem, trust is the heart of the matter. For few of us patients comprehend the biochemistry of cancer treatments. And without a judicious adviser, how can we calculate the tradeoffs of protocols that may gain us time but pain us in the process?

It was pure luck that I found the perfect oncologist.

Brandishing my list of questions, I traveled to Indianapolis, 50 miles from my home, focusing on my need for brute honesty. There I would see Dr. Daniela Matei, whose Romanian origins, I told myself, would perfectly serve my needs. Who can think about Romania without considering its tormented history, its ruined orphanages and gypsy traditions and gothic vampire myths? She had a background that would make it possible for her to recognize the tragic dimensions of my fate.
My vision of Romanian gloom-and-doom, so hilariously stereotypical, evaporated the moment an ebullient 40-something woman with earnest brown eyes and bouncy brown curls entered the room. Although I could take in only a fraction of the complex medical information she carefully enunciated, she answered every question with candor and understood better than I did that my ultimate outlook was bleak. But she nevertheless seemed to relish her work and even our chat. She was an academic, like me, with an immigrant past not unlike that of my parents. She resembled my young colleagues, except she wore snazzier shoes.

I was overjoyed when I learned that Dr. Matei was a published poet. At the time, I knew this meant we both cared passionately about language. Now I realize that she understands and fosters my need to write . . . sometimes about her.

The strange rightness of our relationship underscores how quirky the needs of cancer patients are. Some people want physicians with the best record of keeping their patients alive the longest amount of time. Others look for a Jewish or an Indian doctor or an older man of high rank. Some put their faith in a particular research center, others in a particular referral system. Some need a good deal of time spent on reassurance, others crave the clarity of honest disclosure, as I do.
Because I trusted Dr. Matei’s truthfulness, I enrolled in many more protocols than I ever thought I would. In return, she gave me a priceless gift. While she implicitly accepted my conviction that the disease would kill me, she offered a limited quantity of quality time — four years in which I have been able to write . . . usually not about her.

Although I profit from the research investigations of Dr. Matei, what I cherish is my sense that she will level with me when medical interventions cannot control the cancer and become pointless, or worse. Our monthly dialogues revolve around our families or our writing, and in the process I believe that she has discerned and respects my values.

As a scientist, Dr. Matei assumes that talking has nothing to do with curing. As humanists, we both know that talking helps me live with cancer and leads me to imagine dying at home, with my family, and not in the midst of debilitating treatments. From small talk, small hopes spring eternal.

To go to original site:
http://well.blogs.nytimes.com/2013/07/11/a-cancer-doctor-of-ones-own/

Thursday, June 13, 2013

Into the Wilderness; A Lesson in Grace

Sara Zuboff is a certified Yoga instructor, massage therapist and thyroid cancer survivor. Along with Sharon Holly, she teaches a monthly, 2-hour, yoga-based workshop at the Cancer Support Community-Benjamin Center entitled 'Revive & Thrive' in which cancer survivors create mind/body shifts to overcome overwhelm, stress and struggle. For information on this and other free-of-charge CSC programs, please call 310-314-2555 or visit CSC's website at www.cancersupportcommunitybenjamincenter.org

I sometimes think back about my cancer journey like it was a movie. Rather than a plucky rom-com like The Proposal, it’s tougher and grittier like The Good, The Bad and The Ugly.

The Good: I am a cancer survivor. I had a treatable cancer with a relatively easy surgery and short treatment plan. That I was diagnosed was a miracle born of coincidences for which I am eternally grateful and humbled by.

The Bad: I had to have surgery and treatment where I had allergic reactions, side effects and irreparable damage to my salivary glands. I also must be on medication and follow-up for the rest of my life.

The Ugly: I have a scar on my neck; though small and well-done still noticeable enough that people ask me about it.

In the context of my movie metaphor, I am tough and gritty Clint Eastwood kicking cancer’s butt and taking names. This vision makes me happy and lights me up when I think back to that dark time of diagnosis and treatment. Because the truth is the experience was terrifying and I wasn’t some courageous, tough-as-nails, cowboy-warrior. I was a young, new mom vulnerable and frightened beyond belief. In the midst of it, I felt like I was stuck in the wilderness at night, without a map, supplies or a flashlight. And while I was surrounded by friends and family who loved me, had access to excellent medical care, the psychological terror that comes with a cancer diagnosis was at times suffocating and each night while I waited for that first body scan that would tell me my cancer was gone, the wilderness would come.

And out of necessity, I began to get to know my own terror. I found comfort in a poem by Rumi:

     The Guest House

     This being human is a guest house.
     Every morning a new arrival.

     A joy, a depression, a meanness,
     some momentary awareness comes
     As an unexpected visitor.

     Welcome and entertain them all!
     Even if they're a crowd of sorrows,
     who violently sweep your house
     empty of its furniture,
     still, treat each guest honorably.
     He may be clearing you out for some new delight.

     The dark thought, the shame, the malice,
     meet them at the door laughing, and invite them in.

     Be grateful for whoever comes,
     because each has been sent
     as a guide from beyond.
   
     -- Jelaluddin Rumi,
      translation by Coleman Barks

I invited that panic in and asked it to dinner. I would feel the terror and I would practice an exercise I learned from Shinzen Young where I began labeling the feelings as they arose, learning to notice them without reacting to them. Until I began to notice the darkness receding. Until I noticed my fear of impending nightfall and the wilderness it would bring lessening. Until I noticed a small voice in the back of my heart murmuring, “You’ve got this”.

We all know it is darkest before the dawn. And if you are in the midst of your own wilderness, please hear me now, “you’ve got this”. Even if it is dark, you can’t see and you’re scared: get quiet and listen, “you've got this". This part of the journey is so hard. You are fighting for your life and facing an uncertain future. And sometimes the most you can hope for is a little grace to find you in the dark.

There are moments of transcendence in this journey and you may not find them in the good, but rather in the bad or the ugly. I was reminded of this just today when my son was lying in my lap. He pointed to my neck and said, “Mommy’s neck boo-boo”. I replied and said, “Yes, that’s mommy’s boo-boo.” And he said, “I’ll kiss it and make it better”. And you know what? He totally did.

Thursday, February 28, 2013

MICHAEL SIEVERTS' TIPS/TRICKS TO RECOVER YOUR LIFE

Michael Sieverts is a brain cancer survivor since 2000. He is the instructor for Cancer Support Community’s qigong classes in the parks. Roxbury Park classes meet every Tuesday & Thursday from 10:30a.m. to 12 noon and at Clover Park every Monday and Friday from 9:30 to 11:00a.m. Free to all those affected by cancer. Call 310-314-2555 for more information.
(Photo by Bill Aron)
 
 
 
 
 
 
 
 
Nutrition Part 2 (adapted from “Food Rules” by Michael Pollan and Maira Kalman): Other rules:

● Don’t eat food that comes through your car window.

● Read labels-- avoid foods with sugar (or sugar equivalent) as one of the first 3 ingredients.

● Avoid food with more than 5 ingredients, or made with ingredients you wouldn’t plausibly have in your pantry.

● Junk food is fine if you make it yourself. If you had to clean up after every batch of French fries, you’d rarely make them.

● Get the best ingredients, from farmers if possible. If you shop in supermarkets, buy only on the perimeter—it’s where they put the freshest food.

● Eat until you are satisfied, not full.

● Don’t feel like you have to finish what’s on your plate.

● Don’t go back for seconds.

● Spend more on ingredients, but eat less.

● Transparency is important—don’t buy from vendors who are secretive about where their food comes from.

● Local non-organic is better than organic from long distances—foreign agricultural practices are unregulated.

● Eat food in season—it tastes better, has traveled less.

● Eat a rainbow of plant foods—the phytonutrients in the colors are very healthful.

● Spend at least as much time eating a meal as it took to prepare it.

● Try not to eat alone.

● Break the rules occasionally.

Reading List and Web Resources:
Anticancer, A New Way of Life, New Edition by David Servan-Schreiber MD PhD
What Color Is Your Diet? by David Heber
In Defense of Food: An Eater's Manifesto by Michael Pollan
Food Rules: An Eater's Manual by Michael Pollan and Maira Kalman

Dr. Jeanne Wallace:
http://www.nutritional-solutions.net/

STAY TUNED FOR THE NEXT INSTALLMENT FROM MICHAEL: Attitude/Belief/Support
CSC’s Brain Tumor Group—for patients & family members—meets the 1st and 3rd Monday of each month from 7-9pm. No RSVP required. 1990 S. Bundy Drive, Suite 100, LA, CA 90025. 310-314-2555. CSC validates parking. This blog originally from 'Your Brain After Chemo' http://www.yourbrainafterchemo.blogspot.com/

Friday, February 22, 2013

MICHAEL SIEVERTS' TIPS/TRICKS TO RECOVER YOUR LIFE

Michael Sieverts is a brain cancer survivor since 2000. He is the instructor for Cancer Support Community’s qigong classes in the parks. Roxbury Park classes meet every Tuesday & Thursday from 10:30a.m. to 12 noon and at Clover Park every Monday and Friday from 9:30 to 11:00a.m. Free to all those affected by cancer. Call 310-314-2555 for more information.
(Photo by Bill Aron)
 
Nutrition-Part 1 (adapted from “Food Rules” by Michael Pollan and Maira Kalman):

Eating should be a source of pleasure. The reality is that we’re omnivores, and people have been thriving on a wide variety of diets for millenia. Michael Pollan says that the field of nutrition today is like the field of surgery in 1650—promising, and interesting to watch, but not yet deserving of our total trust. The popular press has made a total hash of the field of nutrition by using the latest headlines to sell papers— findings which gyrate wildly. Margarine, fats, carbohydrates, —sometimes they are the villains, causing all sorts of health problems—then they regain or fall out of favor. And the government is under the sway of the agriculture and food lobbyists; federal dietary guidelines and recommendations are compromised and getting worse.

But don’t stress too much, it’s not difficult to make good food decisions, especially now. Make sure to enjoy yourself, to make eating a pleasurable, slow, and social, function. Follow some simple guidelines, and use your self-awareness to inform you whether what you’re choosing to eat is helping you or causing you setbacks.

Whenever feasible, do your own cooking with organic, local, seasonal, sustainable fruits and vegetables. (Support farmers and the local economy with your money—you are voting for a healthful food system.) Not only can you control the ingredients and the cooking methods, but you are taking an active role in your fight for recovery. Plus you will save money by not eating out. It’s estimated that as much of 2/3 of the cost of medical care in this country is attributable to our poor eating habits. Cooking is a profound way to influence your health: “The best public health tools are a sharp chef’s knife, two cutting boards and a salad spinner.” (Preston Maring, MD, associate physician-in-chief at Kaiser Permanente Oakland)

Restrict wheat, dairy and try to eliminate sugar—but aim for “90-10”: allow yourself some small indulgences to retain feelings of pleasure, since mood affects how you digest. A happily-enjoyed burger is probably providing better-absorbed nutrients than an organic raw kale salad that you are forcing down. Savor what you eat.


STAY TUNED FOR THE NEXT INSTALLMENT FROM MICHAEL:
Nutrition-Part 2 (adapted from “Food Rules” by Michael Pollan and Maira Kalman):
CSC’s Brain Tumor Group—for patients & family members—meets the 1st and 3rd Monday of each month from 7-9pm. No RSVP required. 1990 S. Bundy Drive, Suite 100, LA, CA 90025. 310-314-2555. CSC validates parking. This blog originally from 'Your Brain After Chemo' http://www.yourbrainafterchemo.blogspot.com/


Tuesday, February 19, 2013

MICHAEL SIEVERTS' TIPS/TRICKS TO RECOVER YOUR LIFE



Sleep (adapted from “Brain Rules” by John Medina; resources at end of blog for both 'Exercise' & 'Sleep')
Michael Sieverts is a brain cancer survivor since 2000. He is the instructor for Cancer Support Community’s qigong classes in the parks. Roxbury Park classes meet every Tuesday & Thursday from 10:30a.m. to 12 noon and at Clover Park every Monday and Friday from 9:30 to 11:00a.m. Free to all those affected by cancer. Call 310-314-2555 for more information.

 
Sleep is incredibly important, for cognition, for the immune system, for mood and happiness, so develop good sleep hygiene. Avoid going deep into sleep debt—accumulating consecutive nights of short sleep. “You can’t be healthy if you’re not getting good sleep”:

● Go to bed at a regular time, preferably before 11pm.

● Avoid stimulating activity for the few hours before bed, prepare.

● Avoid eating before going to bed.

● Don’t watch television, or work on a computer in bed.

● Use relaxation techniques to help yourself fall asleep.

● Use the bedroom only for sleeping and sex, not for eating or working.

● Keep the bedroom dark—light interferes with the functioning of your pineal gland.

● If you are occasionally unable to sleep, don’t stress about it, get up for a little while and do something else, preferably not too stimulating.

● If you feel drowsy, be extremely careful, you literally could fall asleep in a heartbeat—do not drive!

● If you’re having regular trouble sleeping, see a specialist.

Reading List and Web Resources:



 
http://www.bettermovement.org/author/toddhargrove/

STAY TUNED FOR THE NEXT INSTALLMENT FROM MICHAEL: 
NUTRITION (adapted from “Food Rules” by Michael Pollan and Maira Kalman)
Having difficulty sleeping? Try one of these relaxing classes at Cancer Support Community. All classes are at no cost to those with cancer and their families/support.
1)'Meditation' every Thursday from 6 - 6:45pm with Malcolm Schultz, LMFT; 2) 'Mindfulness' from 11:30a.m. to 1:00p.m. once a month on Monday (date varies check calendar) with Lisa LaCorte-Kring, LCSW; 3) Relaxation/Visualization every Wednesday from 6:00 to 6:45pm with Christel Trink; and 4) 'Mindfulness Series' with Lisa LaCorte-Kring, LCSW offered throughout the year--check calendar or call 310-314-2555 for information.


And exercise classes: 1)'Core Strength' every Wednesday from 6:15 - 7:00pm with Eileen Johnson, PT; 2) 'Feldenkrais Method' every Wednesday from 1:30 to 2:30p.m. with Marci Spiegler, MS, GCFP; 3) 'Move to Heal Dance Class' every Monday from 6:00 to 7:00pm with Eva Wieland; and 4) 'Pilates: Return to Health' every Tuesday from 3:45 - 4:45pm with Sandy Shimoda; 5) 'Qigong' (see schedule at top of blog) with Michael Sieverts; 6) 'T'ai Chi' every Tuesday from 5 - 6pm with Marianne Lu; 7) 'Yoga' CSC has 7 yoga classes-please check website for dates and times; 8) 'Zumba' every Tuesday from 6:15 - 7pm with Alejandra Ortiz. 

Always check calendar at www.cancersupportcommunitybenjamincenter.org for schedule changes or call 310-314-2555 for more infomation. CSC vallidates parking.