Tuesday, December 17, 2013

WHEN PATIENTS HAVE 'MUSIC EMERGENCIES'

Brian Jantz, a music therapist at Boston Children's Hospital, plays with a patient, Yaneishka Trujillo. Jantz uses music to engage with children. 
Brian Jantz, a music therapist at Boston Children's Hospital,
plays with a patient, Yaneishka Trujillo.
Jantz uses music to engage with children.

By Elizabeth Landau, CNN
updated 1:55 PM EDT, Fri August 23, 2013
STORY HIGHLIGHTS
  • There are about 5,000 board-certified music therapists in the United States
  • They help many different populations, from children in hospitals to Alzheimer's patients
  • Scientific research has shown that music has healing properties
(CNN) -- Brian Jantz marched down the hallway of the hospital with his guitar, accompanying a 4-year-old oncology patient with a maraca and a drum. He remembers they were singing their own creative version of "Itsy Bitsy Spider."

The girl had been anxious about an upcoming X-ray, he said, and resisted going to the procedure. Hospital staff paged Jantz to help. He kept the music going even on the elevator; the girl's parents, a nurse and a child-life specialist sang, too.
 
"I'm not completely sure that she realized when it was happening ... because before you knew it, we were back on the elevator, back in the room, and the music just continued straight through," Jantz said.
 
Jantz is one of two music therapists at Boston Children's Hospital, where the idea of using music to help patients as young as premature babies in the neonatal intensive care unit has taken off in the last decade. Jantz and his colleague have scheduled visits with patients in almost every unit but will come to a melodic rescue in urgent situations.
 
"We kind of joke around, 'It's like a music emergency,' but it really is," Jantz said. "It really can be like, 'This patient needs music therapy right now.' "
 
Music therapy formally began in the 20th century, after musicians went to play for World War I and World War II veterans at hospitals across the United States. Today, there are about 5,000 board-certified music therapists in the United States, according to the American Music Therapy Association. Over the last decade, the group's membership has expanded, particularly among students.
Music therapy has many uses, from treating individuals in private practice to elderly care settings.
Music therapy has many uses, from treating individuals in private practice to elderly care settings.
"We're not huge, but are slow growing -- but a mighty -- group," said Barbara Else, senior adviser for policy and research at the American Music Therapy Association.
 
Why it works
There is scientific research to back up the idea that music has healing properties. A 2013 analysis by Daniel Levitin, a prominent psychologist who studies the neuroscience of music at McGill University in Montreal, and his colleagues highlighted a variety of evidence: for instance, one study showed music's anti-anxiety properties, another found music was associated with higher levels of immunoglobin A, an antibody linked to immunity.
 
The brain's reward center responds to music -- a brain structure called the striatum releases the chemical dopamine, associated with pleasure. Food and sex also have this effect. The dopamine rush could even be comparable to methamphetamines, Robert Zatorre, professor of neurology and neurosurgery at Montreal Neurological Institute, told CNN last year.
Beyond that, music presents a nonthreatening tool for interventions that is already attractive to patients, Jantz said.
 
"On the surface it works because, in some way, everyone relates to music," Jantz said. "Music really is universal."
 
Music therapists often work nonverbally, which is why the method is particularly effective for individuals with verbal expression difficulties, such as children with autism, Else said. The profession helps people at every age, from babies to Alzheimer's patients.
 
For individuals with autism in particular, music therapy has shown to be a positive reinforcement of appropriate behaviors and a motivator to reduce negative ones, according to the American Music Therapy Association. Music can also help with the development of language skills, and the identification and expression of emotions, which are characteristic challenges in autism. Some children with autism have superb musical abilities, and music therapy can help them focus on their strengths.
 
Alzheimer's patients, who have memory and thinking impairment, may still recognize songs of their youth or respond emotionally to music. Music can also be used in elderly care settings to calm or stimulate residents.
 
Music as a tool
Singing with someone when you feel anxious, or expressing emotions through songwriting, are more than just casual activities in music therapy. Therapists always have specific goals in mind, such as helping patients overcome a fear.
 
One fundamental of music therapy is called the "Iso principle," the idea that the therapist takes cues from the client when choosing what music to play. This can inform the improvised music that therapists and clients play together. If the client feels hyped up, the therapist and client might play vigorous drum beats together, but if the goal is to relax, they might begin energetically and then tone down.
 
Therapists are conscious of rhythm, tempo, texture and melody of the music as clients express themselves. In a hospital setting such as Jantz's, such components of music can also distract a patient who is in pain.
 
In Else's private practice, she has been helping a college student with an anxiety disorder called agoraphobia; the young woman, who was homeschooled, has been fearful of leaving her house.
The student writes song lyrics when she meets with Else, and also learns guitar from the therapist in the process. By discussing the lyrics and other elements of the music that the student generates through improvisation, the client and therapist uncover clues about what is fueling the woman's anxieties.
 
"We are using music as a mechanism. One, for motivation, but also as a mechanism so she can express herself and we can figure out what are some of these things that are driving her fears," Else said. "We've made a lot of progress."
 
Having worked through her issues with music, the young woman became more open to going out in public, Else said. She accompanied Else to a rehearsal for an opera, and then to an actual opera performance.
 
She has now started junior college and is doing well, Else said. The young woman still sees Else for follow-up maintenance.
 
"Part of that therapeutic process working with her ... was building a high level of trust," Else said. "Developing trust with someone so she could understand that the world isn't quite so scary out there, to get to the root cause."
 
Music as a lifesaver
Going through music therapy isn't always relaxing, fun or easy.
 
Cpl. Demi Bullock, 25, a former Marine, experienced post-traumatic stress disorder after her second deployment in Afghanistan. In summer 2011, music therapy was part of her treatment program.
At first, Bullock, who had played the guitar since she was 15, hated music therapy. Her therapist, Rebecca Vaudreuil, would organize activities such as a drum circle, lyric analysis, listening exercises or instrumental playing for service members in the program.
 
Impatience, and a desire to withdraw from emotion, quickly overtook Bullock. She refused to participate.
 
"I did not like playing music, having something make me feel that pain and that sadness, that can be completely overwhelming," she said.
 
Such resistance isn't unusual among returning military, Vaudreuil said. Some people can connect with music more than others, but in some cases it takes time and "soul-searching" for music to become a beneficial part of recovery.
 
Bullock rediscovered music therapy more than a year after her initial encounter with it. In January, Vaudreuil invited her to join the Semper Sound Band, a musical program through the nonprofit Resounding Joy Inc. that helps service members reintegrate into the community and promotes group cohesion. Vaudreuil was the band director at that time.
 
The invitation came at a particularly dark moment. Bullock was in the process of getting evicted and continued to struggle with PTSD and depression. She had also recently attempted suicide.
Bullock came to discover that jamming on a guitar, keyboard or drum set helped her cope with stress or intrusive thoughts. The band also provides a social support system and an outlet for self-expression.
"The songs that come out of it, and the process they go through, is so genuine," Vaudreuil said. "The songs are a direct reflection of their emotions, their trials, what they've been through, their experiences, and it's completely cathartic for them."
 
Bullock continues to play with the band, and works as an intern at Resounding Joy. Her job allows her to be on the facilitator side of music therapy, and connect with other veterans.
"If I hadn't gotten into it (music therapy), I'd literally be dead or still be homeless," Bullock said. "It literally did save my life."
 
Measuring calm
Other therapists are exploring technologies that allow them to see what effect music has on the human body, and use that information to guide clients. This is called biofeedback.
Eric B. Miller, a music therapist in Phoenixville, Pennsylvania, uses real-time data about patients' physiological responses to inform how he runs sessions. He recently discussed a biofeedback method at the Interdisciplinary Society for Quantitative Research in Music and Medicine conference in Athens, Georgia.
 
"The idea is that this information is informing me as a music therapist how I want to be playing my guitar, what tempo I'm going for," he said at the conference.
 
Conference attendees took turns listening to music while wearing a finger sensor. Through a computer program, a graph appeared on a projector screen showing relative heart rate, heart rate variance and skin conductivity in real time. The computer program then translated the readings from the sensor into tones, which could be heard overlayed with music.
 
Independent researcher Elijah Easton listened to another conference attendee (full disclosure: it was the author of this article) improvise on the piano. Easton said he found the activity relaxing; Miller noted that Easton's heart rate had decreased after the music stopped.
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In a real session, Miller would create a physiological profile of a client by looking at his or her responses to sitting naturally, doing a cognitive task, relaxing and envisioning something emotional. After more relaxation, he would set up the biofeedback system of tones, and challenge the client to lower the tone, an indication of relaxation. Different tones can be assigned to different variables such as heart rate.
 
The point is helping clients learn the art of self-regulation, of adjusting their own bodies, Miller said.
"The music and the data are both co-therapists," Miller said.
Biofeedback-oriented music therapy can be used in a variety of conditions, including high blood pressure and seizures -- not necessarily instead of mainstream medicine, but in concert with it, Miller said.
 
"Western doctors may recommend it to complement existing treatment or as a trial in cases of adverse reaction to typical pharmacological remedies," he said.
 
In a more subtle way, Jantz also uses biofeedback with patients who are already hooked up to monitors at Boston Children's Hospital for medical reasons. When he plays music in the neonatal intensive care unit, he can see what impact strumming his guitar has by observing the heart rate graph.
 
Fun is part of it
Jantz sees music itself as having an intrinsic therapeutic value, in addition to the positive experience that a person can have with a music therapist. For children in particular, it can encourage them to learn a new skill; sometimes patients who stay at Boston Children's Hospital for longer periods get good at guitar.
 
Occasionally Jantz has to dress in a surgical gown and gloves, but for the most part the kids don't view what he does as a therapy -- they're just relieved that instead of poking and prodding, he's there to play music with them.
 
"There's nothing wrong with having fun," he said. "That's part of how it works."
He's prepared for a full repertoire of traditional children's songs, but he has also worked with young kids who love The Beatles. And some teens would rather hear music from their earlier childhood than Justin Bieber.
 
The phone that pages him, though, doesn't beep or ring to alert him to his next destination.
 
It vibrates, so as to not interrupt the music.
 
 
Cancer Support Community Benjamin Center has two music programs: Circle Singing meets the 1st Saturday of each month from 11am to 12:15pm and Family Drum Circle meets the 2nd and 4th Saturdays of each month from 10:45 to 11:45am.  Free of charge to those affected by cancer.  We validate parking! http://bit.ly/CSCMB2
 
 

Thursday, December 12, 2013

GIVING A FACE TO CANCER: FOR THE LOVE OF PHOTOGRAPHY

By Kimber Westmore
Crafts Changing Hearts

We are honored to introduce Jana Cruder. A single conversation with Jana confirmed our belief that one person can, and must, use his or her gifts to improve the lives of others. Jana’s gift is photography.

Because Jana has shared in the journey of cancer, she was determined to focus her energies towards this growing community. When she was just seven years old, her mother was diagnosed with breast cancer. A 22-year journey of operations, treatments and care-taking helped her set a course to use her lens as an instrument of healing. When she lost her mom in 2010, she decided to focus on creating something unique for cancer patients and their families.
“Raising money for research is important, but that didn’t help my mom. I want to help people living with cancer now,” she shared. “I understand where they are when they step in front of my lens.”
Something to Remember is Jana’s expression of love. This year, Jana interviewed and photographed families of the Cancer Support Community-Benjamin Center. Speaking with them enabled her to accurately, poignantly document their unique journeys. On Saturday, December 7th, she assembled a talented group of individuals–including make-up artists and hair stylists, and in keeping with her core values about diet, Jana retained caterers specializing in healthy food. (No pizza and soda for this event.) It all happened at The Focus Studio in Venice, CA.

Below, see the beautiful focus of Jana’s lens this year.  Please click here for a video of last year’s event.

Be prepared to have your heart changed forever! Ours at CCH will never be the same.
Jana Cruder Photo shoot

Tuesday, December 10, 2013

THE INFORMED PATIENT: THE NEXT FRONT IN CANCER CARE

The Wall Street Journal
By Laura Landro, Dec. 9, 2013 7:34 p.m. ET
 
As More Patients Survive, Cancer Centers Handle Disease's Knock-On Effects
 
For cancer patients, getting through the rigors of treatment is the first hurdle. Then, life as a cancer survivor poses its own daunting physical and emotional challenges.
 
A growing number of hospitals and community cancer centers, which treat the majority of the nation's cancer patients, are launching survivorship-care programs. These include treatment follow-up plans, physical rehabilitation and emotional assistance, such as counseling and support groups. They resemble programs currently offered by big urban cancer centers like MD Anderson in Houston and Memorial Sloan-Kettering in New York.
 
As more cancer patients are treated successfully, treatment centers are focusing on the next phase and discovering it can pose daunting challenges that require new approaches to care. Laura Landro explains on Lunch Break. Photo: Greenville Health System.
Chemotherapy and radiation can damage vital organs such as the heart and liver, possibly causing secondary diseases years later. The body can be debilitated, cognitive functions impaired and emotions distressed, making return to normal life and work difficult. Some 70% of cancer survivors experience depression at some point. Patients have higher levels of anxiety years after the disease is cured. And there is always the chance that cancer will return.
More patients are expected to face such health issues as the number of cancer survivors grows, partly due to improved early detection and treatment.
The Commission on Cancer, a consortium of professional organizations that accredits U.S. cancer centers treating 70% of newly diagnosed patients, will begin in 2015 requiring that they provide survivorship-care plans for their patients.
 
"I tell patients now we are going to follow you for your entire lifetime," says W. Larry Gluck, an oncologist and medical director of the Greenville Health System's Cancer Institute, in Greenville, S.C., which set up a Center for Integrative Oncology and Survivorship in 2011. "The mental and physical needs of cancer patients go on long after therapy has been completed." In the past, patients typically were sent back to their family doctor, who might have little knowledge of delayed side effects or complications of treatment and recurrence risks, Dr. Gluck says.
There are close to 14 million cancer survivors living in the U.S., a number that is expected to grow to 18 million by 2022, according to the National Cancer Institute. About 40% have been alive 10 years or more after diagnosis (including this reporter, a leukemia survivor).
Private health insurers and Medicare typically cover cancer patients' medical visits, during which some survivorship-care planning can take place. Cancer centers say some private insurers consider survivorship planning a necessary service. A bill currently in congressional committee, the Planning Actively for Cancer Treatment Act would require Medicare to cover care-planning services at diagnosis and once cancer patients finish treatment.
 
 
Nonprofit groups like Cancer Support Community, which was formed in 2009 through the merger of two of the largest support organizations, Gilda's Club and the Wellness Community, offer free services including personalized assessment and care plans, distress screening, support groups and complementary therapies such as yoga and meditation. Last year, it announced a partnership with Greenville to incorporate its services into the hospital system as part of the recent survivorship center.
"Cancer hospitals are realizing that they have to be a one-stop shop, taking care not just of the body, but of the mind and soul of the survivor," says Kim Thiboldeaux, chief executive officer of Cancer Support Community.
After being treated at the Greenville, S.C., Cancer Institute last year, Renee Gossman says yoga classes at the institute's survivorship center helped her regain strength. Greg Beckner
Renee Gossman, 71, a personal trainer who teaches water aerobics, was diagnosed at the Greenville Cancer Institute with uterine cancer in January 2012. She had a hysterectomy, chemotherapy and radiation. Ms. Gossman, who doesn't have a lot of family living nearby, says she was fatigued and felt isolated during nearly a year of treatment. "You get through all of that, and then it's like, what's going to happen now?" she says.
 
Ms. Gossman says her oncologist, Larry Puls, referred her late last year to Greenville's survivorship center where she met with a social worker, a nurse navigator and a dietitian. She received a summary of her treatment, copies of her pathology reports, a follow-up plan and a summary of other programs and activities she might find helpful.
 
"They give you a team of people who are going to look after you, get you back involved in the world and see to your physical, social and emotional needs," Ms. Gossman says. She started a 12-week exercise program at the center that focuses on restoring aerobic conditioning, muscular strength and flexibility. She also began taking yoga classes and a writing workshop through the Cancer Support Community program at Greenville. Ms. Gossman currently volunteers once a week as a greeter in the lobby of the cancer institute.
Other services offered at Greenville include free nutrition counseling and help with the after-effects of specific cancers, such as swelling, called lymphedema, that often occurs after breast-cancer surgery.
Patients, and their caregivers, are encouraged to use the survivorship center as a resource, says Regina Franco, a nurse practitioner and manager of the survivorship center. "If you hear on the news that you should be taking vitamin E, call us and ask, 'Is this really something I should be doing?' "
Greenville recently joined with researchers at the University of South Carolina to open a human-performance lab that will assess patients before and after treatment, billed as an office visit.
One area of research: how cancer and chemotherapy affect energy production at the cellular level and how exercise might restore some of the damage. Also being studied is the impact of complementary therapies such as yoga, massage and acupuncture, Dr. Gluck says.
 
Many smaller cancer centers and oncology practices are using a software program called Journey Forward, created by a group of advocacy organizations and health companies, to create customized follow-up plans. The program, which includes resources for both doctors and patients, has been downloaded about 30,000 times since it was launched in 2009, says Shelley Fuld Nasso, chief executive of the nonprofit National Coalition for Cancer Survivorship, which helped develop the software. For cancer survivors, "things can come up many years down the road that you aren't expecting or prepared for," she says.
 
Write to Laura Landro at laura.landro@wsj.com
 

Monday, December 9, 2013

CANCER PATIENTS' DESIRE FOR PSYCHOLOGICAL SUPPORT

At the Cancer Support Community-Benjamin Center far more women seek support than men.  Below is an interesting study from 2010 in the journal Psychooncology confirming the tendency of women to 'desire' support more than men.  What do you think are the reasons?  How does our society cultivate this desire in women and not in men?  And more importantly, what has the effect been on us as a culture?
 
Psychooncology. 2010 Feb;19(2):141-9. doi: 10.1002/pon.1568.
 
Cancer patients' desire for psychological support: prevalence and implications for screening patients' psychological needs.
 
Merckaert I, Libert Y, Messin S, Milani M, Slachmuylder JL, Razavi D.
 
Source
Université Libre de Bruxelles, Faculté des Sciences Psychologiques et de l'Education, B-1050Brussels, Belgium.
 
Abstract
OBJECTIVES:
To investigate cancer patients' desire for psychological support and to identify patients' sociodemographic, disease-related and psychological factors associated with this desire.
 
METHODS:
The study is part of a multicenter, cross-sectional study assessing cancer patients' needs and desire for psychological support. Patients completed the Hospital Anxiety and Depression Scale, the Ways of Coping Checklist, the Cancer Rehabilitation Evaluation System and reported their desire for psychological support.
 
RESULTS:
Among the 381 included patients, women (26%) desired psychological support significantly more often than men (11%) (p<0 .001="" a="" and="" as="" associated="" being="" contextual="" coping="" desire="" difficulties="" distress="" diversely="" encountered="" factors="" for="" having="" men="" modalities="" neither="" nor="" o:p="" or="1.36;" other="" p="0.003" patients="" psychological="" s="" such="" support-seeking="" support.="" support="" their="" treatment="" was="" were="" with="" women="" younger="">
 
CONCLUSIONS:
One female cancer patient out of four and one male cancer patient out of ten desire psychological support. Results emphasize the need to screen not only for cancer patients' distress but also for their desire for psychological support. This will allow implementing psychological interventions according to patients' needs and desire.
 
PMID:19382112[PubMed - indexed for MEDLINE]
 
To see this abstract in the original, go to http://www.ncbi.nlm.nih.gov/pubmed/19382112

Thursday, December 5, 2013

LOW-FAT DIET, OMEGA-3 LINKED TO REDUCED PROSTATE CANCER AGGRESSION

Cancer Support Community-Benjamin Center Prostate Support Group meets the 2nd Monday of each month from 7 -9pm at 1990 S. Bundy Drive, Suite 100, LA, CA 90025.  Gay Men's Prostate Group meets the 1st and 3rd Tuesday of each month from 7 - 9pm at the L.A. Gay & Lesbian Center at The Village at Ed Gould Plaza, 1125 N. McCadden Place, Los Angeles, CA 90038.  Call 310-314-2555 for more info and to find out about our prostate cancer-related educational workshops.  http://bit.ly/EDUCSC


Check out this article:
Low-fat diet, omega-3 linked to reduced prostate cancer aggression - Medical News Today

Monday, December 2, 2013

THE PROCESS OF CREATING ART


 
By Victoria Moore

Art has always been very important to me, even though I'm not much of an artist. I can't draw or paint like Pablo Picasso or concoct a canvas with vibrant colors like Henri Matisse. I can't capture a flower perfectly like Georgia O'keeffe or dribble paint like Jackson Pollack. I can enjoy the process of making my own compositions, however, that comes from a week of studying nature in all its glory or immersing myself in a famous masterpiece by Pierre August Renoir.

Before I took Kimber Luederitz's "Creative Art Class" at the Realm Studio in Santa Monica, California, I didn't even know what "the process" was. I thought you either had to have artistic talent or years of training to be an artist. Gifted with the patience it takes to work with people who're going through the cancer experience, Kimber provided a highly supportive environment where I not only grew artistically but emotionally and psychologically as well.  Her class is provided by Elizabeth's Canvas and is a partnership with Cancer Support Community-Benjamin Center.

Compared to the more advance students in the class, I initially felt what I brought to the art table was meager fare indeed. The only experience I had had was the Art History and Design classes I was required to take as part of my coursework as a Fashion Merchandising major at CSULA. At the time I utilized these skills when I worked in retail to do visual merchandising and fashion coordination. Later, when I became a fashion/feature writer I used them for photography and when describing various trends, stores and events. When I got Breast Cancer in 2010 and discovered a way to use art in Esther Dreifuss-Katen's "Cancer and Creativity" class to express what I was going through, I saw how beneficial it was.

Despite the differences in Kimber and Esther's classes, I still responded to both with equal enthusiasm. I did notice, however, that my education about art grew more with Kimber's class because we focused on specific types of painting for a longer period of time and got a chance to really work on a project. In the first class, we started with "color studies" in the mode of artist Mark Rothko. For some reason I chose pink, blue/green and white and painted them in straight bands with a series of connecting lines between the sections. When I thought about why I chose that palette I remembered that pink is my favorite color, blue means harmony, green means rebirth and white means cleanliness.

For our second class, we continued with color studies, but this time we added an organic shape to one portion of the painting. Following a week of studying trees, flowers, leaves and clouds I chose leaves as my organic shape. I still used pink and blue but this time I also added yellow and green. We finished the "color studies" in one day and besides feeling happy about creating something beautiful in a single sitting, I also enjoyed how involved I became while bringing it to completion.

The next painting we worked on, a vase of flowers, was a lot more difficult and caused me hours of frustration and anxiety. To start us off Kimber showed us a series of paintings on the computer then let us select a color copy from a variety of different ones. I chose a gorgeous Impressionist piece by Renoir that had a luxurious goldish-brown background against a bouquet of light pink flowers in a green vase. After we studied our chosen picture we were then instructed to sketch out our composition on canvas and then work on the table and background. Unlike the "color studies" we'd done previously this project was to be completed in stages.  My painting went through a significant amount of changes,where I eventually ended up painting a flower and vase that were simpler, but no less striking.

The event that made my progress even more trying was the breast reconstruction surgery I had on September 26. I was taking a computer class at the time too, so the effort it took to participate in both classes, was enormous. Still I pushed on with this painting, seeing it as becoming a reflection of my trials and tribulations. In the end the painting I ended up with, pink orchids in a green vase atop a red tablecloth and against an orange background, was a collaboration between Kimber and I that I profoundly appreciated. Vibrant and resilient, with all of the colors I'm attracted to on a good day, this final composition is an effort I'll always be glad I struggled to achieve.

Look for more upcoming art classes in partnership with Elizabeth's Canvas and Cancer Support Community-Benjamin at http://www.cancersupportcommunitybenjamincenter.org/calendar/program-calendar/month.calendar/2013/12/02/-.html or call 310-314-2555 for more information.