Michael Sieverts is a
brain cancer survivor since 2000. He is
the instructor for CSC’s qigong classes in the parks. Roxbury Park classes meet every Tuesday &
Thursday from 10:30a.m. to 12 noon and at Clover Park every Monday and Friday from
9:30 to 11:00a.m. Free to all those
affected by cancer. Call 310-314-2555.
This is an incredibly important moment in the history of
cancer treatment, and we appear to be at an inflection point in terms of
understanding the multitude of diseases we refer to collectively as cancer. A
good deal of the excitement has to do with scientific breakthroughs in new
imaging refinements, a greater understanding of genetics and the merging of
math, chemistry, biology and physics. Young scientists aren’t staying in one
discipline any more, instead they take up careers such as, “computational biologist,”
and collaborate across disciplines.
But the other area of enormous progress, which is emerging as we speak, is the voice of the patient—our voice. As medicine becomes more collaborative, as we access our own information on the web and through other sources, and as we start talking to EACH OTHER and acquiring a collective intelligence, we have within our grasp the tools to take the entire enterprise to a whole different level.
This is not merely consistent with the mission of the Cancer
Support Community—it IS the mission: that by becoming an active participant in
your fight for recovery, along with your healthcare team, you’ll have a better
quality of life.
One thing that’s important to keep in mind is that THIS IS A
NICE PROBLEM TO HAVE—because by definition, having chemo brain is an indication
that you’re alive. This is not a small victory, considering how many of us are
here tonight despite having illnesses that not so long ago were characterized
as “invariably fatal.” What a luxury, at one level, to have the focus shift
from “how do I stay alive” to “how do I have a good quality of life?”
Michael’s Tips and
Tricks to Recover Your Life
Even though these tips and tricks are divided into
categories, there are actually no real divisions. When you go to a support
group, for example, you acquire important and relevant medical information
about your illness. When you go to an exercise class, you get support from the
other class members and improve your cognition. When you meditate, you gain calmness
and increase your focus. And so on.
If I had to limit myself to one sentence of advice, I’d be
hard-pressed. But here goes: pay close, moment-to-moment nonjudgmental
attention to what’s happening in you and around you, get and stay healthy, get
support, claim your strengths without obsessing about what you perceive as your
failings, and be grateful and peaceful whenever you can manage it.
I highly encourage you to seek out people to support you in
the process, people who have gone through what you’re going through—their
advice and support is invaluable. If your illness is so obscure or rare that
you can’t find other survivors locally, use the Internet to locate others—just
about every disease has its own community at this point. That’s how you’re
going to find the right treatments and right doctors—the good doctors get
better results.
STAY TUNED FOR THE
NEXT INSTALLMENT FROM MICHAEL: TECHNIQUES TO BUILD COGNITION!
CSC’s Brain Tumor
Group—for patients & family members—meets the 1st and 3rd
Monday of each month from 7-9pm. No RSVP
required. 1990 S. Bundy Drive, Suite
100, LA, CA 90025. 310-314-2555. CSC validates parking. This blog originally from 'Your Brain
After Chemo' http://www.yourbrainafterchemo.blogspot.com/
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