The State University of New York at Buffalo: Breast Cancer Study

From the UB Reporter

Thoughts Matter Immediatly after Breast Cancer Diagnosis

By SARA SALDI
Published: September 16, 2010
What goes through a woman’s mind when she first hears the words, “You have breast cancer”? One in eight women will hear those words at some point in their lives and yet very little research has been conducted about women’s thoughts at this early stage before treatment or surgery.

The ways women move from becoming a “breast cancer patient” immediately after diagnosis to integrating cancer into their understanding of themselves is revealed in a new study by Robin Lally, assistant professor in the School of Nursing.

The study was published recently in Cancer Nursing, one of the nation’s top nursing journals.

“The effect of a cancer diagnosis on a woman’s self concept is not something that health care providers often consider when they are focused on the physical aspects of the disease and treatment early after diagnosis,” Lally explains.

Her study reveals how women acclimate to their diagnosis as they adapt to a new world—a foreign environment in which there are new roles and new people with a new culture and strange words.

The study found that “threatened self-integrity”—the threat to how we know ourselves—is the main concern for women as they acclimate to being “breast cancer patients” or “survivors.” The women’s self-integrity also was threatened by how they perceived others’ impressions of them and by whether they attributed developing cancer to their own actions or inaction.

From the findings, Lally has developed a theory of acclimating to breast cancer that focuses on three stages to the initial adjustment process: surveying the situation, taking action and the emerging self.

Her findings may help health providers better understand the thought process of women as they come to grips with the meaning of breast cancer in their lives as early as a week or two after discovering they have the disease.

“These women should know they are not alone in their thinking, that their initial thoughts are not abnormal; they are shared by others in the early days after being diagnosed,” Lally says.

Lally interviewed 18 women age 37 to 87 diagnosed with stage 0 to stage II breast cancer. The women were interviewed within six to 21 days after the diagnosis and were asked to think back to the day they were diagnosed with breast cancer and share their experiences.

Lally explains that essentially, women will work through a period of internal reflection about how breast cancer will affect them and those around them (“I have something that others dread”) to taking control of their immediate environments (reducing negative thoughts and using distraction) to incorporating cancer into their lives and contemplating the future.

In fact, many women in Lally’s study embraced personal change and saw the diagnosis as “a wake-up call” to appreciate life and the people in it. For the most part, women felt optimistic and hopeful that they would survive their cancer, Lally says.

At the end of the study, Lally was surprised to discover the “amount of mental energy that women expend when thinking about their diagnosis and strategies to control their environment” as a way to protect themselves from uncomfortable moments that arise when they are the “cancer patient” in social and work situations.

Free Support For Moms With Cancer

Check out the post on Christina Elston's blog, Health e, where she writes about TWC-WLA's new group for moms with cancer. The group starts Wednesday, May 5, from 10:30 am - 12 pm. Come check it out!

With Cancer, Let’s Face It: Words Are Inadequate

We’re all familiar with sentences like this one: Mr. Smith died yesterday after a long battle with cancer. We think we know what it means, but we read it and hear it so often that it carries little weight, bears no meaning. It’s one of the clichés of cancer.

It is easy shorthand. But it says more about the writer or speaker than it does about the deceased. We like to say that people “fight” cancer because we wrestle fearfully with the notion of ever having the disease. We have turned cancer into one of our modern devils.

But after staggering through prostate cancer and its treatment — surgery, radiation and hormone therapy — the words “fight” and “battle” make me cringe and bristle.

I sometimes think of cancer as a long and difficult journey, a quest out of Tolkien, or a dark waltz — but never a battle. How can it be a battle when we patients are the actual battleground? We are caught in the middle, between our doctors and their potential tools of healing and the cell-devouring horde.

Click here to read more from this post by Dana Jennings from the New York Times Well Blog.

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